It's been a while since I've blogged so I thought an update is in order...especially since we have so many positive things to share! First of all, Brendan passed dairy!! This opens so many doors for him and he is loving every minute. He is eating his weight in yogurt and drinking cow's milk with no gastrointestinal issues at all. I am so amazed at how well his body is handling it. The last few months we have been pushing food trials and Brendan has been passing with flying colors. We are sticking to meat/poultry, nuts, fruits/veggies, and now dairy. Ha ha...he is pretty much on a Paleo diet! I initially thought we would go for wheat and soy but why bother? I have cut those (and all other processed foods) out of my diet and my overall health has improved greatly. So, I'm doing the same for B. The game plan is to retrial anything he failed previously (like coconut) while we wait for the kids to wrap up the school year. Once school is out, we will move forward with the most important food retrial of all, rice! We are hoping Brendan is outgrowing FPIES and a rice trial is the only way to know for sure.
Wow! As nervous as we are, we are also so very excited and HOPEFUL. Things are looking up and if all goes well, I will also be able to stop breastfeeding after almost three years! We are so close we can taste it...literally. I will continue to keep everyone posted. On a more personal note, for those FPIES families still in the thick of things, I just want to say it does get better. Brendan is proof of that. Those words were hard to hear at the beginning of our journey and even three months ago! Those positive statements are meant to encourage but all too often they are less than encouraging...believe me, I understand. All I could ever think was well great, how do you propose we live in the meantime? I cannot talk or even think about what Brendan has been through without choking up. He is getting through it though. We still have our worries but we are getting there and you will too. My strong dislike of FPIES has not changed but we have and continue to learn a lot as a family. The experience has built character and compassion in my children. We have a healthier view of food and life in general which is vital in these modern days of convenience food and life in the fast lane. Last but certainly not least, we have an appreciation for the little miracle that is Brendan. After all, he is the one who has endured FPIES with nothing but a smile and gentle sweetness.