It also appeared as reflux, colic and formula intolerance in my oldest child. He was fine while I breastfed and the moment we stopped, the GI problems started. He ended up on a hypoallergenic formula and was a chronic spitter/colicky baby until one year of age. Brendan’s older brother had a mild form of FPIES. ..to milk and soy only. He outgrew it after the first year and was a happy baby after.Let’s now fast forward to four kids, many doctor visits and countless hours of research later. Brendan and I were unknowingly following a Paleo diet. Our diet consists of meats (baked, grilled or sautéed in olive oil), lower carb veggies, fruits such as berries, almonds, coconut and eggs. Funny enough, the higher carb veggies such as sweet potato, are listed as common FPIES triggers. We avoid all grains and rice and personally, I have never felt better. My GI symptoms (which previously prevented me from functioning some days) have subsided. I have eliminated all gluten, rice and processed foods. Brendan also seems to do very well on this type of diet. That is, of course, until we attempt to retrial things like rice. Is there a correlation between a Paleo diet and FPIES triggers? I don’t know, probably not but for us, it seems to work.
Sometimes I think about the advice I will pass on to my children in regards to infant care and diet. What will that advice be? Do not introduce rice or oat cereal as a “first” food. Start with a meat or broth. Don’t trial a new food for just a few days…do it for a few weeks. Stay away from the all too convenient Gerber baby food products. Make your own baby food with single ingredients and last but most certainly not least, breastfeed your child. There are so many gut healing properties and natural probiotics in breast milk, how can you go wrong?