Friday, February 20, 2015

Why We Say No to Vaccines

I never thought I would be in this place…this isolated existence where everything I do for my family is met with criticism and judgment.  We are criticized for eating gluten free and dairy free and avoiding as many GMO foods as possible.  We are made to feel as if we are a bother, an inconvenience when we ask for an ingredient list prior to eating a meal.  There is no enjoyment in eating anywhere other than home.  I have anxiety every time we leave the house so most meals are eaten at home or packed to go.  Yet this is just a tip of the iceberg.

I haven't even begun to discuss the judgment we face in regards to our choice in alternative medical care and our stance on the current vaccine debate.  We choose alternative care because western medicine can’t put Brendan’s medical puzzle pieces together.  We choose an alternative route and continue to see new health practitioners because we can’t give up on my son.  Our goal for him is simple.  He is a precious little boy who deserves the best in medical care and therapies so he can have the best possible outcome.  We don’t know if Brendan will ever be able to live on his own as an adult.  Justin and I are faced with these eye opening issues constantly.  Justin spends the day working hard while trying to help me with research and caring for Brendan in between.  We eat, breathe, sleep and repeat this cycle.  Every day.  No one really sees what we encounter at home.  We put on our game faces when we leave the house.  We have seen what food reactions and vaccines can do to make daily life worse for Brendan.  He cannot tolerate another vaccine because regression in physical health and behavior is the price he will pay.

Most don’t believe vaccines can cause adverse reactions.  We are fortunate that a few health care professionals have documented his reaction.  It doesn’t mean our parental rights are protected though.  We are on the verge of losing the right to keep Brendan safe.  No one in my family can get a live vaccination such as chicken pox, MMR or the nasal flu vaccine because there is the risk of viral shedding which is enough to infect an unvaccinated child or one with immune issues which Brendan is both.  So, what happens to Brendan’s older siblings if exemptions are no longer allowed?  They lose the right to attend school if we can’t find a way to comply while protecting Brendan.  In WA state, they are trying to do away with exemptions and here in Texas, they are actively trying to repeal religious exemptions.  So, those who avoid vaccines because they were made with aborted fetal cells, you will also lose your right to choose.  Yes, vaccines are made with aluminum, human diploid cells, monkey liver cells, and guinea pig embryo cells in addition to other questionable ingredients.  After receiving the recommended vaccines for the first three years, Brendan had high levels of aluminum that could not be explained.  His levels went back to “normal” last year.  We did nothing different except decline further vaccinations during well child exams.

If your child can tolerate vaccines, that’s great.  I have three older kids who did okay as well.  But I also have one who didn’t do so well.  There are many of us out there who have first hand experience with vaccine reactions and/or injury.  This shouldn’t be a debate of who’s right and who’s wrong.  The vaccine program is not a one size fits all deal but no one will budge to question the vaccine manufacturers let alone the government agencies who are allowing this assault on a minority of children.  However, I am being asked to make my child a sacrificial lamb for the greater good.  How is this fair to my son and the rest of my family?  Why is it that we are not allowed to sue the vaccine manufacturers or the doctors administering these vaccines?  They were granted immunity.  If you think the measles outbreak is a public health concern, wait until all of our vaccine affected kids with disabilities become adults and need government assistance.  Why doesn’t anyone see the alarming increase in autism as a public health concern?  I am saddened by the fact that the vaccine debate has become a political issue and the real concerns are being overlooked thanks to the scare tactics of the media and government.  Where have all the good guys gone?  What is going to happen to children who cannot tolerate vaccinations but will be forced to receive them?  I know from experience there is no one waiting in the wings to help families like ours in the aftermath of vaccines.  I ask myself every day what it will take for change to happen.  It’s not looking good from where I’m standing.


  1. Hello,

    Thank you for sharing your story. I happened upon your blog while researching vaccines in children with FPIES reactions. My first born daughter is a 2 and a half year old for whom chicken is not safe. (Our second born is still too young to determine whether or not she will have FPIES.) I am weary of vaccines in general, but particularly in my daughter's case as she becomes violently ill with chicken, and chicken protein is an ingredient in some vaccines. I have not found a lot of information regarding the topic, and am not willing to find out whether or not she would have a reaction by using her as a guinea pig, so instead I avoid. Unfortunately I am in California, where exemptions are limited to medical only. And as her FPIES has only been diagnosed by myself, I am not sure that we will be able to obtain a medical exemption. Anyway I am curious about your experience and would like to talk more. Thanks again for making your story public. Be well!

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